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Remote Runner

If you live outside Sydney and want to join in, you can register as a Remote Runner. We will send you a pack and then you can create your own family 2k or 5k run, walk or jog.

You can take part in RBC Race for the Kids from wherever you live!

Jackson Fleeton is only 12 years old but has already dealt with a lifetime of adversity. Jackson suffers from a rare genetic disorder called Agenesis of the Corpus Callosum, which means that the left and right sides of his brain are not connected.  Everyday tasks like writing, simple maths or verbal communication can be very difficult for Jackson.

Additionally, Jackson has Motor Sensory Neuropathy which has resulted in the degeneration of the nerves in his legs, making walking and running quite a struggle. He had major surgery on his legs 12 months ago in the hope of decreasing the degenerative process, but it is likely that eventually he will be confined to a wheelchair.

Jackson lives in Dubbo with his Mum, Cher, Dad, Craig, and three siblings. With ongoing doctor’s consultations Jackson and his family have spent a lot of time in Sydney throughout his life, staying at the Ronald McDonald Houses. When Jackson heard about the RBC Race for the Kids event and that Ronald McDonald House Randwick is the fundraising beneficiary, he was excited to take part and complete the race remotely with his family and friends.

“While I have been at the Ronald McDonald Houses, I have made friends with many other kids, like some who have to stay at the house for months and months. Because of this, I wanted to take part in the RBC Race for the Kids charity run. I have to try and walk between 2-5km which I know will be hard for me because of my disorder, but I don't mind because I will be helping to create a better house for the children to stay in” comments Jackson.

Jackson is currently the top individual fundraiser for the Race campaign, having raised over $3,500 himself and with no end in sight.

Jackson's story

Jackson Fleeton is only 12 years old but has already dealt with a lifetime of adversity. Jackson suffers from a rare genetic disorder called Agenesis of the Corpus Callosum, which means that the left and right sides of his brain are not connected.  Everyday tasks like writing, simple maths or verbal communication can be very difficult for Jackson.

Additionally, Jackson has Motor Sensory Neuropathy which has resulted in the degeneration of the nerves in his legs, making walking and running quite a struggle. He had major surgery on his legs 12 months ago in the hope of decreasing the degenerative process, but it is likely that eventually he will be confined to a wheelchair.

Jackson lives in Dubbo with his Mum, Cher, Dad, Craig, and three siblings. With ongoing doctor’s consultations Jackson and his family have spent a lot of time in Sydney throughout his life, staying at the Ronald McDonald Houses. When Jackson heard about the RBC Race for the Kids event and that Ronald McDonald House Randwick is the fundraising beneficiary, he was excited to take part and complete the race remotely with his family and friends.

“While I have been at the Ronald McDonald Houses, I have made friends with many other kids, like some who have to stay at the house for months and months. Because of this, I wanted to take part in the RBC Race for the Kids charity run. I have to try and walk between 2-5km which I know will be hard for me because of my disorder, but I don't mind because I will be helping to create a better house for the children to stay in” comments Jackson.

Jackson is currently the top individual fundraiser for the Race campaign, having raised over $3,500 himself and with no end in sight.